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The patient’s voice in the evaluation of orphan drugs
How can health technology assessment bodies take into account the voice of patients with rare diseases when granting access to orphan drugs. -
Journal of Patient-Reported Outcomes
The International Society for Quality of Life Research (ISOQOL) and Editors are proud to announce that Journal of Patient-Reported Outcomes -
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Access to treatment: unequal care for European rare disease patients
Access for existing rare disease treatments -
May is national asthma and allergy awareness month
ACQ1 and the Asthma Control Test, core measures for National Institutes of Health–initiated clinical research in adults -
Capturing the patient’s perspective through Patient-Reported Outcome questionnaires
PRO questionnaires developed by Sanofi -
A new book: Quality of Life – the assessment, analysis and reporting of patient-reported outcomes
Analysis and interpretation of quality–of–life assessments
