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  • Clinical Outcome Assessments
    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
    Collaborating with questionnaire authors.
    The most trusted distributor of COAs

    800+ exclusive COA distributions on behalf of their copyright owners

    Author discussing assessment development.
    PROQOLID™: the largest COA database

    8,400+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
    Team reviewing questionnaire content.
    About ePROVIDE™

    Online access to all our services and COA databases

    Working on validation studies.
    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
    Reviewing translated assessments.
    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
    Whitepaper-Digitizing-COAs.jpg
    New whitepaper

    Digitizing COAs: A streamlined approach to approval

    Developing new PRO instruments.
    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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    Scientific meeting about COAs.
    News
    Meeting with instrument developers.
    Conferences
    Discussion about PRO measures.
    Webinars
  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments (COAs).

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    Collaborative research session.
    Team

    A global team of multi-disciplinary experts

    Team analyzing PRO data.
    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  • rare diseases patient
    29 February 2024

    Rare Disease Day: raising awareness and improving patients’ quality of life

    Learn about initiatives to improve quality of life of people with rare diseases and to make their voices heard in clinical research.

  • New in ePROVIDE - Thumbnail
    21 November 2023

    New functionalities in ePROVIDE

    The ePROVIDE platform deploys new features and improves the display of key information.

  • case study thumbnail
    10 October 2023

    The KOOS, HOOS and FAOS now distributed by Mapi Research Trust, on behalf of Professor Roos

    Mapi Research Trust has recently enriched its catalogue with 3 new COAs, developed and owned by Professor Ewa Roos: the KOOS, HOOS and FAOS.

  • thumbnails
    06 April 2023

    Mapi Research Trust partners with Springer Nature

    Mapi Research Trust announces a new partnership with Springer Nature to support the distribution of Clinical Outcome Assessments (COAs).

  • Team reviewing questionnaire content.
    16 February 2023

    Five rheumatology and hematology COAs newly available through Mapi Research Trust

    Mapi Research Trust’s catalog of COAs now includes 5 new questionnaires available for streamlined licensing through the ePROVIDE platform.

  • woman working on laptop with statistics
    05 December 2022

    MSD COA website

    Merck Sharp & Dohme LLC, Rahway, NJ, USA (MSD) collaborates with Mapi Research Trust to launch MSD’s COA Website.

  • Thumbnail partnership Mapi Research Trust and QOL Technologies Ltd
    24 November 2022

    Observia partners with Mapi Research Trust for the distribution of the SPUR Adherence Profiling Tool

    Mapi Research Trust: exclusive partner of Observia for the licensing/distribution of SPUR (context of clinical research not located in Greater China).

  • ecoa
    06 September 2022

    WCG Clinical Endpoint Solutions expands its eCOA library with support from Mapi Research Trust

    Mapi Research Trust supports WCG Clinical Endpoint Solutions in the development of 27 electronic versions (eCOA) of Clinical Outcome Assessments (COAs).

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