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  • Clinical Outcome Assessments
    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
    Collaborating with questionnaire authors.
    The most trusted distributor of COAs

    800+ exclusive COA distributions on behalf of their copyright owners

    Author discussing assessment development.
    PROQOLID™: the largest COA database

    8,400+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
    Team reviewing questionnaire content.
    About ePROVIDE™

    Online access to all our services and COA databases

    Working on validation studies.
    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
    Reviewing translated assessments.
    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
    Whitepaper-Digitizing-COAs.jpg
    New whitepaper

    Digitizing COAs: A streamlined approach to approval

    Developing new PRO instruments.
    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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    Scientific meeting about COAs.
    News
    Meeting with instrument developers.
    Conferences
    Discussion about PRO measures.
    Webinars
  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments (COAs).

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    Collaborative research session.
    Team

    A global team of multi-disciplinary experts

    Team analyzing PRO data.
    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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  • Blog-HAE-Tanna-Rare-Disease-Day-Thumbnail
    27 January 2021

    The ERICA Project

    Collaboration in rare disease: ERICA (European Rare disease research Coordination and support Action) Consortium.

  • Meeting 11
    06 November 2020

    Spotlight on the Quality of Life General (QGEN®) Survey

    A post-webinar author interview

  • Professional partnership establishment
    04 August 2020

    Distribution partnership with Inflexxion

    Exclusive licensing and distribution agreement for Inflexxion's scales.

  • Rare disease awareness campaign
    06 July 2020

    A newly published article in the Orphanet Journal of Rare Diseases

    To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases

  • Business partnership agreement moment
    01 July 2020

    Mapi Research Trust announces new distribution partnership with the Center for Environmental Therapeutics

    MRT is now the exclusive distributor of CET's scales.

  • News section background.
    06 May 2020

    Health related quality of life scores of typically developing children and adolescents around the world

    A meta‑analysis with meta‑regression by Nikki Ow and Nancy E. Mayo
  • News section background.
    01 January 2018

    New COA website: Zarit Burden Interview (ZBI) Questionnaire

    MRT unveils new Clinical Outcome Assessments (COA) Website for the Zarit Burden Interview (ZBI) Questionnaire
  • News section background.
    29 September 2017

    The patient’s voice in the evaluation of orphan drugs

    How can health technology assessment bodies take into account the voice of patients with rare diseases when granting access to orphan drugs.
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