This non-exhaustive list of expert links will help you find other sites of potential interest.
Learned Societies:
Australian Health Outcomes Collaboration
www.health.act.gov.au/ahoc
CDC HRQOL Website (centers for Disease Control and Prevention)
https://www.cdc.gov/hrqol/
Cochrane Colaboration
www.cochrane.org
ENCePP (European Network Centres for Pharmacoepidemiology and Pharmacovigilance)
www.encepp.eu
Mapi Research Trust is a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies,a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.
ISOQOL (International Society for Quality of Life Research)
www.isoqol.org
ISPE (International Society for Pharmaceutical Engineering)
www.ispe.org
ISPOR (International Society for Pharmacoeconomics and Outcomes Research)
www.ispor.org
National Institutes of Health (NIH)
www.nih.gov
Questionnaires:
C-SSRS (Center for Suicide Risk Assessment)
www.cssrs.columbia.edu
EORTC Quality of Life Unit
https://qol.eortc.org
EuroQol
www.euroqol.org
FACIT (Functional Assessment of Chronic Illness Therapy)
www.facit.org
HealthACTCHQ
www.healthactchq.com
IQOLA (International Quality of Life Assessment)
www.iqola.org
Measurement of Health-Related Quality of Life & Asthma Control
www.qoltech.co.uk
PedsQL™ (Measurement Model for the Pediatric Quality Inventory™)
www.pedsql.org
RAND
www.rand.org
Rehabilitation Measures Database
www.rehabmeasures.org
Health Authorities:
EMA (European Medicines Agency)
www.ema.europa.eu
FDA (U.S. Food and Drug Administration)
www.fda.gov
Mapi Websites:
ERIQA (European Regulatory Issues on Quality of Life Assessment Group)
www.eriqa-project.com
PRO Harmonization Group
www.eriqa-project.com/pro-harmo/home.html
PROLABELS database (Patient-Reported Outcomes & drug market authorizations)https://eprovide.mapi-https://eprovide.mapi-trust.org/about/about-prolabels
PROQOLID database (Patient-Reported Outcome and Quality of Life Instruments Database)
https://eprovide.mapi-trust.org/about/about-proqolid
Other:
World Health Organization (WHO)
www.who.int