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  • Clinical Outcome Assessments
    Clinical Outcome Assessments

    What are Clinical Outcome Assessments (COAs)? What do they measure?

    Learn more about COAs
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    The most trusted distributor of COAs

    700+ exclusive COA distributions on behalf of their copyright owners

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    PROQOLID™: the largest COA database

    7,000+ COAs described in details and accessible in this unique database

  • Services
    Services

    Mapi Research Trust provides turnkey solutions for your Clinical Outcome Assessments (COAs) strategies - including COA databases, targeted literature reviews, licensing.

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    COA Databases Patient-Centered Endpoint Intelligence COA Licensing Translation and Linguistic Validation eCOA Licensing COA Repository
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    About ePROVIDE™

    Online access to all our services and COA databases

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    What are eBooklets?

    Find out more about this step-by-step guidance for valid digitization of COAs

  • Author Collaboration
    Author Collaboration

    Our team is dedicated to assisting authors in the daily management of their questionnaires and all derivatives, including translations and electronic versions

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    COA distribution COA copyright and protection Promotion of COAs and developers Testimonials
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    Catalog of COAs distributed by Mapi Research Trust

    800+ exclusive distributions of COAs, accessible in ePROVIDE

  • Resources
    Resources

    ACCESS all our resources on COAs and eCOA: webinars, publications, blogs. SUBSCRIBE to receive email updates.

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    Blog Publications Useful links Webinar recordings Whitepapers
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    New whitepaper

    Digitizing COAs: A streamlined approach to approval

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    New whitepaper

    COAs and copyright: How to mitigate risks of infringement and misuse in clinical research and practice

  • News & Events
    News & Events

    Stay informed with our latest news and check all our upcoming events. SUBSCRIBE to get email updates.

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    News
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    Conferences
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    Webinars
  • About us
    About us

    Mapi Research Trust is a non-profit organization dedicated to improving patients’ quality of life by facilitating access to Clinical Outcome Assessments(COAs).

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    Team

    A global team of multi-disciplinary experts

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    Experience

    Collecting & Processing Patient Centered Outcomes information for more than two decades

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General

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Articles

  • Direct-to-patient contact methodology in the context of rare diseases and orphan drugs.
  • Tips and Tricks for Using Direct-to-Patient Contacts in Pharmacoepidemiological Studies.
  • Direct-to-patient study designs for pharmacovigilance.
  • Direct to Patient Contact: An Added Value to Follow up Patients in Observational, Longitudinal Studies.
  • Challenges to obtain real-life data in observational studies: What are the solutions when the patient is the main data provider?
  • Direct-to-Patient Contact adds value to Late-Phase Research.
  • Reminders Help Improving Completion Rate Of Home-Administered Lifestyle Questionnaires.
  • Study designs using a direct-to study participant approach for self-reported data collection.
  • Direct-to-patient contact and proactive pharmacovigilance system: a case study.
  • Cost Per Patient In Non-Interventional Studies and Added Value of Direct To Patient Contact Service.
  • ISPOR 2014 Posters
  • Intellectual property, copyright issues and distribution of Patient-Centered Outcomes.
  • PROLabels
  • PROQOLID
  • Literature Reviews
  • IQOD
  • ERIQA/PRO Harmonization Group
  • Education
  • Development Projects
  • Cochrane HRQoL Methods Group.

Posters & Presentations

  • 2017. Clinical Trials on Alzheimer’s Disease Meeting – Providing culturally sensitive training and monitoring to clinicians administering functional assessments in dementia global trials

 

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