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RLS-QOL (Johns Hopkins Restless Legs Syndrome) PDF Print E-mail

Developed by:
Richard P. Allen et al.

Copyright:
Dr Richard Allen holds the copyright to the original Johns Hopkins Restless Legs Syndrome Quality of Life questionnaire (RLS-QOL) and derivative works including a shared copyright on its translations with some of the companies/ Institutions sponsoring the translations.

Reference publication:
Abetz L, Vallow SM, Kirsch J, Allen RP, Washburn T, Earley CJ. Validation of the Restless Legs Syndrome Quality of Life questionnaire. Value Health. 2005 Mar-Apr;8(2):157-67.


Conditions of use:

1. User-Agreement:

User is required to complete and sign a 'user agreement' in which specific conditions requested by the author are detailed.

There are two types of user-agreement, one specific to the use of the RLS-QOL in commercial studies, and one specific to the use of the RLS-QOL in clinical practice and not funded academic research.

2. Access Fees:

carre6 Author's royalty fees:

The use of the RLS-QOL in any academic research study is free from any Author’s royalty fees.

The use of the RLS-QOL by “for profit” organizations is subject to author’s royalty fees:
• Less than 100 administrations/reproductions =  105 Euros per study, plus 105 Euros per translated version (excluding US English original version)
• 101 to 1,000 administrations/reproductions = 1,050 Euros per study, plus 210 Euros per translated version (excluding US English original version)
• Greater than 1,001 administrations/reproductions = 2,100 Euros per study, plus 210 Euros per translated version (excluding US English original version)

carre6 Distribution fees are requested according to the study design and context of use of the questionnaire:
1. Access is free of charge in the framework of not-funded academic research (1) and individual clinical practice,
2. Access to the RLS-QOL for a use in funded academic research (2) is subject to a distribution fee payable to MAPI Research Trust, of an amount of 300 (three hundred) Euro* per study plus an additional 50 (fifty) Euro per language version requested.
3. Access to the RLS-QOL for a use in commercial studies (3) involving "for-profit" organizations is subject to a distribution fee payable to MAPI Research Trust, of an amount of 500 (five hundred) Euro* per study plus an additional 150 (one hundred and fifty) Euro per language version requested.

* excluding VAT

(1) Not funded academic research: if the project is not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds then fees are waived.

(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees.

(3) Commercial studies (industry, CRO, any for-profit companies)

Review copy:

Original US English version available for review purpose only. Please click here to access.

Contact information:

MAPI Research Trust
Christelle Berne

27 rue de la Villette
F - 69003 LYON
Tel: +33 4 72 13 65 75
Fax: +33 4 72 13 66 82
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Please have the appropriate User Agreement -- i.e. "Commercial studies" or "Academic research/Clinical practice" -- completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.
 

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