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IRLS (International Restless Legs Syndrome Study Group) PDF Print E-mail

Developed by:
International Restless Legs Syndrome Study Group (USA)

Objective:
Easily and quickly administered instrument which can be applied to all patients with restless legs syndrome (RLS) to measure disease severity for clinical assessment, research, or therapeutic trials.

Copyright:
© IRLS Study Group  2001 – All Rights Reserved
The International Restless Legs Syndrome Study Group holds the copyright to the original International Restless Legs Syndrome Study Group Rating Scale (IRLS) and derivative works including a shared copyright on its translations with some of the companies/ Institutions sponsoring the translations.

Reference publication:
Walters AS, LeBrocq C, Dhar A, Hening W, Rosen R, Allen RP, Trenkwalder C; International Restless Legs Syndrome Study Group. Validation of the International Restless Legs Syndrome Study Group rating scale for restless legs syndrome. Sleep Med. 2003 Mar;4(2):121-32.

Conditions of use:

1. User Agreement:

User is required to complete and sign a User agreement in which specific conditions requested by the Authors are detailed.

There are two types of User Agreement:
    - User Agreement specific to the use of the IRLS in commercial studies
    - User Agreement specific to the use of the IRLS in clinical practice and not funded academic research.

2. Access Fees:

carre6 Authors' royalty fees:

If the IRLS is used in a study sponsored by “for profit” organizations, its use is subject to Authors' royalty fees. These  fees contribute to current research, scale development and some support for young investigators studying RLS. 

The current fees for use of the IRLS and related materials are:

- Less than 50 patients included in the study =  3675 € per study
- From 50  to 199 patients included in the study = 7350 € per study
- From 200  to 499 patients included in the study = 15750 € per study
- From 500  to 999 patients included in the study = 21000 € per study
- More than 1.000 patients included in the study = 26250 € per study

The use of the IRLS in any academic research study is free from any Authors' royalty fees.

carre6 Distribution fees:

Distribution fees are requested according to the study design and context of use of the questionnaire:

- In not-funded academic research (1) and individual clinical practice: free of charge
- In funded academic research (2): 300 €* per study + 50 €* per language version
- In commercial studies (3) involving "for-profit" organizations: 500 €* per study + 150 €* per language version

* excluding VAT

(1) Not funded academic research: if the project is not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds then fees are waived.

(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees.

(3) Commercial studies (industry, CRO, any for-profit companies).

Review copy:

Original US English version available for review purpose only. Please click here to access.

Contact information:

MAPI Research Trust
Christelle Berne

27 rue de la Villette
F - 69003 LYON
Tel: +33 4 72 13 65 75
Fax: +33 4 72 13 66 82
This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Please have the appropriate User Agreement i.e. "Commercial studies" or "Academic research/Clinical practice" completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.

More information on IRLS on PROQOLID

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