Version 1.2
Developed by: Kelly Vincent, Alison Carr and Michael Rose (UK)
Objective: To assess health-related quality of life of patient suffering from neuromuscular diseases.
Copyright: INQoL © 2005 M R Rose & King’s College NHS-Trust, All rights reserved.
Reference Publications: Construction and validation of a quality of life questionnaire for neuromuscular disease (INQoL). Vincent KA, Carr AJ, Walburn J, Scott DL, Rose MR. Neurology, March 2007 (In Press).
Validation of a quality of life measure for myasthenia gravis. Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Neuromuscular Disorders 2006; 16 supplement: S152 (Abstract).
Rose M, Brooks V, Walburn J, Sanders D, Pandya S, Kissel J et al. Validation of the UK Individualised Neuromuscular Quality of Life measure for use in the USA. Neuromuscular Disorders 2006; 16 supplement: S176 (Abstract).
Conditions of use:
1. User Agreement:
Existing translations: User is required to complete and sign a User Agreement in which specific conditions required by the copyright owners are detailed.
New translation(s): in addition to the User Agreement, User is required to complete and sign a Translation Agreement.
2. Access fees:
Author's royalty fee :
- The use of the INQoL in commercial studies is subject to Dr. Michael Rose's royalty fee, of an amount of 500 €* per study and per language version - The use of the INQoL in academic research and individual clinical practice is free from author's royalty fee.
Other specific conditions requested by the author are detailed in the User Agreement.
Distribution fees are requested according to the study design and context of use of the questionnaire:
- In not-funded academic research (1) and individual clinical practice: free of charge - In funded academic research (2): 300 €* per study + 50 €* per language version - In commercial studies (3) involving "for-profit" organizations: 500 €* per study + 150 €* per language version
* excluding VAT
(1) Not funded academic research: if the project is not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds then fees are waived.
(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees.
(3) Commercial studies (industry, CRO, any for-profit companies).
Review copy:
Original UK English version available for review purpose only. Please click here to access.
Contact information:
MAPI Research Trust Christelle Berne
27 rue de la Villette F - 69003 LYON Tel: +33 4 72 13 65 75 Fax: +33 4 72 13 66 82
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Please have the User Agreement and/or Translation Agreement completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.
More information on INQoL on PROQOLID
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