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QUAL HEMO (Haemophilia Quality of life questionnaire) PDF Print E-mail

Developed by:
Developed by Mapi Values, with a research grant from BAXTER, with the support of the QUAL HEMO scientific committee: Dr. Claude  GUEROIS, Haemophilic Treatment Center, Tours, France; Prof. Hervé CHAMBOST, Haemophilic Treatment Center, Marseille, France; Dr. Thierry LAMBERT, Haemophilic Treatment Center, Kremlin Bicêtre, France; Dr. Jocelyne  PEYNET, Haemophilic Treatment Center, Versailles, France; Dr. Marc TROSSAERT, Haemophilic Treatment Center, Nantes, France.

Objective:
To document HRQL throughout the lifetimes of haemophiliac patients.

Copyright:
QUAL HEMO© BAXTER and the QUAL HEMO scientific committee, 2003-2008, All rights reserved.

Reference publications:
Guerois C, Lambert T, Fressinand E, Chambost H, Peynet J, Rafowicz A et al. Assessment of health related quality of life in haemophilia population: validation of the QUAL HEMO, a French haemophilia age-group specific quality of life questionnaire. Haemophilia 2006;12 Suppl 12

Trudeau E, Dias C, Lambert T, Chambost H, Peynet J, Fressinaud E et al. Development of the haemophilia age-group specific quality of life questionnaire. ISPOR 6th annual European congress, Barcelona, Spain, 9-11 November 2003

Descriptive information:
The QUAL HEMO is available for 3 age groups: Adolescent (13-17), Adult, Child (2/12)/Parent


Conditions of use:

1. User-Agreement:

User is required to complete and sign a User Agreement in which specific conditions required by the author are detailed.


2. Access fees:

carre6 Author's royalty fee : the use of the QUAL HEMO in commercial studies involving “for-profit” organizations is subject to a 500 (five hundred) Euro fee per age group, per study and per available translation to be used in the protocol/application.

Other specific conditions requested by the author are detailed in the User Agreement.

carre6 Distribution fees are requested according to the study design and context of use of the questionnaire:
  1. Access is free of charge in the framework of not-funded academic research (1) and individual clinical practice,
  2. Access to the QUAL HEMO for a use in funded academic research (2) is subject to a distribution fee payable to MAPI Research Trust, of an amount of 300 (three hundred) Euro* per age group, per study plus an additional 50 (fifty) Euro per language version requested.
  3. Access to the QUAL HEMO for a use in commercial studies (3) involving "for-profit" organizations is subject to a distribution fee payable to MAPI Research Trust , of an amount of 500 (five hundred) Euro* per age group, per study plus an additional 150 (one hundred and fifty) Euro per language version requested.


* excluding VAT

(1) Not funded academic research: if the project is not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds then fees are waived.

(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees.

(3) Commercial studies (industry, CRO, any for-profit companies).


Contact information:

MAPI Research Trust
Christelle Berne

27 rue de la Villette
F - 69003 LYON
Tel: +33 4 72 13 65 75
Fax: +33 4 72 13 66 82
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Please have the user-agreement completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.

More information on QUAL HEMO on PROQOLID


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