Developed by:
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical Institutions (USA)

Objective: 
The evaluate treatment interventions in Alzheimer's Disease.

Copyright:
ADRQL©1997, 2009 by Peter V. Rabins, M.D. Judith D. Kasper, Ph.D. and Betty S. Black, Ph.D 

Reference publication:
Rabins Peter V, Kasper Judith D, Kleinman I et al. Concepts and methods in the development of the ADRQL : an instrument for assessing health-related quality of life in persons with Alzheimer's disease. Journal of Mental Health and Aging, 199;5,1:33-48

Conditions of use:

1. User Agreement:

User is required to complete and sign a User Agreement in which specific conditions requested by the Authors are detailed.

2. Access fees:

Authors' royalty fees:

- The use of the ADRQL is free from any Authors' royalty fee for categories (1) and (2).

- The use of the ADRQL in commercial studies, category (3) will be subject to the Authors' royalty fees of an amount of 10,000 US dollars per protocol/application plus an additional 500 US dollars per available language version (original version and translated versions)

 Other specific conditions requested by the Author are detailed in the User Agreement.

Distribution fees are requested according to the study design and context of use of the questionnaire:

- In not-funded academic research (1) and individual clinical practice: free of charge

- In funded academic research (2): 300 €* per study + 50 €* per language version

- In commercial studies (3) involving "for-profit" organizations: 600 €* per study + 250 €* per language version

* excluding VAT

(1) Not funded academic research: if the project is not explicitly funded, but funding comes from overall departmental funds or from the University or individual funds then fees are waived.

(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees.

(3) Commercial studies (industry, CRO, any for-profit companies).

Review copy:

Original US English version available for review purpose only. Please click here to access.

New translations:

For the production of new translations to be used in commercial studies, each translation shall be coordinated by Mapi Institute.

Contact information:

MAPI Research Trust

27 rue de la Villette
F - 69003 LYON
Tel: +33 4 72 13 65 75
Fax: +33 4 72 13 55 73
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Please have the User Agreement completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.

More information on the ADRQL on PROQOLID.

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