MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.


Developed by:
Pusic AL, Cano S, Klassen A (USA, UK, Canada)

Objective:
To measure the satisfaction and quality of life of patients undergoing cosmetic and reconstructive breast surgery

Copyright:
Memorial Sloan-Kettering Cancer Center and The University of British Columbia © 2007. All rights reserved.

Reference publications:
Pusic AL, Klassen AF, Scott AM, Klok JA, Cordeiro PG, Cano SJ. Development of a New Patient Reported Outcome Measure for Breast Surgery: The BREAST-Q. Plast Reconstr Surg. 2009 Aug;124(2):345-353.

Klassen A, Pusic AL, Scott A, Klok J, Cano S. Satisfaction and quality of life in women who undergo breast surgery: A qualitative study. BMC Women's Health. 2009 May 1; 9:11.

Pusic AL, Chen CM, Cano S, Klassen A, McCarthy C, Collins ED, Cordeiro PG. Measuring quality of life in cosmetic and reconstructive breast surgery: a systematic review of patient-reported outcomes instruments. Plast Reconstr Surg. 2007 Sep 15;120(4):823-37.

Pusic AL et al. Measuring Quality of Life in Breast Surgery: Content Development of a New Modular System to
Capture Patient-Reported Outcomes (The MSKCC Breast-Q). ISOQOL Annual Meeting, October 2006, Lisbon , Portugal.

Descriptive information:
The BREAST-Q™ is designed to provide clinicians and researchers the ability to tailor their own version of the questionnaire to suit their needs.


Basic structure:

4 separate modules for:

carre6 Reconstruction
carre6 Reduction / Mastopexy
carre6 Augmentation
carre6 Mastectomy

Includes scales:

carre6 Satisfaction with breasts
carre6 Satisfaction with outcome
carre6 Psychosocial well-being
carre6 Physical well-being:

carre1 Chest and upper body symptoms
carre1 Trunk and abdoment symptoms

carre6 Sexual well-being
carre6 Satisfaction with abdominal appearance
carre6 Satisfaction with nipple appearance
carre6 Satisfaction with process of care:

carre1 Information
carre1 Plastic surgeon
carre1 Medical team and office staff


Conditions of use:


1. User Agreement:

User is required to complete and sign a User Agreement in which specific conditions required by the Authors are detailed.

2. Access Fees:

carre6 Authors' royalty fees

- In academic research and non-funded clinical purposes (1): free of charge

- In commercial studies/protocols: Author's royalty fees apply for commercial users. Please contact Dr Andrea Pusic at This e-mail address is being protected from spambots. You need JavaScript enabled to view it  in order to pay the royalty fees. MAPI Research Trust shall not release the questionnaires until payment confirmation is received from the Authors of the BREAST-Q™.

Other specific conditions requested by the Authors are detailed in the User Agreement.

carre6 MAPI Research Trust's distribution fees are requested according to the study design and context of use of the questionnaire:

- In not-funded academic research (1) and individual clinical practice: free of charge.

- In funded academic research (2) : free of charge.

- In commercial studies (3) involving "for-profit" organizations:  600 €* per module per study + an 
additional 250 €* per language version.

* excluding VAT

(1) Not funded academic research


(2) Funded academic research: projects receiving funding from commerce, government, EU should anticipate paying the corresponding fees

(3) Commercial studies (industry, CRO, any for-profit companies)


Review copy:


English versions available for review purpose only. Please click here to access


New translations:


For the production of new translations to be used in commercial studies, each translation shall be coordinated by MAPI Institute.


Contact information:

MAPI Research Trust

27 rue de la Villette
F - 69003 LYON
Tel: +33 4 72 13 65 75
Fax: +33 4 72 13 55 73

This e-mail address is being protected from spambots. You need JavaScript enabled to view it


Please have the User Agreement completed, dated and signed and return one original copy to MAPI Research Trust by post. As soon as we receive it, we will process your request.


More information on the BREAST-Q on PROQOLID


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