MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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Questionnaire Copyright
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If you wish to know:

carre6 How to protect an author’s rights

carre6 How to protect your questionnaire and its translations

carre6 How best to handle the distribution of your questionnaire and its translations

carre6 How to centralize information about your questionnaire and its translations

carre6 How to disseminate accurate information about your questionnaire and its translations

MAPI Research Trust can help. Facing the vagueness of international laws with respect to copyrights, and the difficulty in interpreting and adapting these in the specific context of PRO questionnaires, we have developed a unique expertise in this area.


Besides providing specific expert advice tailored to your needs we can also set up a centralized distribution process for your questionnaire. This will guarantee the protection of its scientific integrity whilst facilitating wide and easy access to it.


For more information and expert advice please contact Martine CARON at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or Marie DULAC TRIMOREAU at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

References: Intellectual Property and Copyright issues
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To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)