MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Pharmaco-Epidemiology worldwide.
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If you wish to know:

carre6 How to protect an author’s rights

carre6 How to protect your questionnaire and its translations

carre6 How best to handle the distribution of your questionnaire and its translations

carre6 How to centralize information about your questionnaire and its translations

carre6 How to disseminate accurate information about your questionnaire and its translations

MAPI Research Trust can help. Facing the vagueness of international laws with respect to copyrights, and the difficulty in interpreting and adapting these in the specific context of PRO questionnaires, we have developed a unique expertise in this area.


Besides providing specific expert advice tailored to your needs we can also set up a centralized distribution process for your questionnaire. This will guarantee the protection of its scientific integrity whilst facilitating wide and easy access to it.


For more information and expert advice please contact Caroline ANFRAY for more information at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

References: Intellectual Property and Copyright issues
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New questionnaires distributed by MAPI Research Trust


FIS (Fatigue Impact Scale)
D-FIS (Daily Fatigue Impact Scale)
John Fisk (Canada)

KHQ (King's Health Questionnaire)
Linda Cardozo and Con Kelleher (UK)

MPQ (McGill Pain Questionnaire)
Ronald Melzack (Canada)

MPQ-SF (McGill Pain Questionnaire - Short Form)
Ronald Melzack (Canada)

Nausea Questionnaire 
Ronald Melzack (Canada)

ODI (Oswestry Disability Questionnaire)
Jeremy Fairbank (UK)

PI-ED (Paediatric Index of Emotional Distress)
GL Assessment (UK)

SATMED-Q (Treatment Satisfaction with Medicines Questionnaire)
The EACCOS Group (Spain)

SF-MPQ-2 (Short-form McGill Pain Questionnaire)
Ronald Melzack (Canada) and IMMPACT (USA)


To access our catalog, please click here.



Coming soon!


Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)



For any information, please contact:
contact@mapi-trust.org