MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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Worldwide network of PRO experts
Worldwide network of PRO experts


Since 1995, we have been creating an international network of PRO experts, which now incluldes over 3,100 researchers. We have also been establishing privileged relationships with opinion leaders, such as Prof. Donald Patrick from the University of Washington at Seattle who spent a sabbatical year with us in Lyon, Dr John Ware, developer of the SF-36, Dr Albert Wu developer of the MOS HIV, and Prof. CRB Joyce, developer of the SEIQoL. Besides our internal resources and our own expertise, all those privileged relationships help provide quick and reliable information on health-related quality of life.

We have also established collaborative links with other organizations involved in this field such as the Australian Health Outcomes Collaboration (AHOC), the Medical Outcomes Trust (MOT), and the World Health Organization (WHO).



 

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New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)