Mapi Research Trust has a unique library that centralizes information on over 3,300 PRO, ClinRO, and ObsRO questionnaires; these are either generic or disease-specific.
Our library also centralizes all the translated versions of these questionnaires that have been linguistically validated by Mapi or performed by other teams. Mapi have translated more than 2,500 questionnaires into over 160 languages.
Well structured, descriptive information on the questionnaires is classified into specific folders; it includes the following: domain assessed, number of items, observation period, measurement properties, specific publications, and conditions for use and dissemination. We also have copies of the questionnaires in their original languages and many of their available translations.
Our catalogue can be found on our PROQOLID database, which enriches our unique collection of information.