MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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Questionnaires


Over 3,000 PRO questionnaires
, either generic or specific, are available within our library. Out of these, more than 500 were translated by the MAPI Institute into over 145 languages. Other questionnaires were gathered from the literature or were received directly from their developer further to specific requests. Disease-specific questionnaires are classified by pathology and population, each folder containing as much structured information as possible such as a descriptive table on the questionnaire, a copy of the questionnaire in its original language, some of its translations, specific publications, conditions for use and dissemination. One third of the questionnaires are also available in electronic form. This unique collection complements the information provided in PROQOLID.

All the questionnaires and their translations can be consulted in-house.

Number of instruments available at the Information Resources Centre
ADDICTION 8 ONCOLOGY 81
AIDS 15 OPHTHALMOLOGY 18
ANAESTHESIA/INTENSIVE CARE 2 ORAL HEALTH 2
BONE MARROW 2 PAIN 47
CARDIOVASCULAR DISEASES 40 PEDIATRICS 46
CAREGIVERS 24 PHYSICAL FUNCTION 6
COGNITIVE FUNCTION 9 PSYCHIATRY 118
COPING 3 RESPIRATORY DISEASES 53
DEMENTIA 11 RHEUMATOLOGY 57
DERMATOLOGY 17 SATISFACTION 37
DIABETES 47 SELF-ESTEEM 2
ENDOCRINOLOGY 12 SEXUALITY 62
ENT-IMMUNOLOGY SLEEP DISORDERS 22
GASTROENTEROLOGY 53 SOCIAL FUNCTION 13
GENERIC 61 SURGERY 2
GERIATRICS 10 UROLOGY/NEPHROLOGY 55
GYNECOLOGY 29 UTILITY 5
NEUROLOGY 74 WORK 8

 

 

To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)