MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
Library

Our library houses a unique collection specialized in Patient-Reported Outcomes (PRO) and Pharmaco-Epidemiology (PE).


PRO collection

proOver 23,700 articles, 250 books, reports on PRO, HRQL, and Pharmacoeconomics are recorded in the Information Resources Centre library catalog.

In particular, we have subscriptions to key journals in this field such as Quality of Life Research, Pharmacoeconomics, and Value in Health.

The majority of our articles are single copies ordered from our French information providers INIST or BIUM. All articles are physically available in our library and filed in specific folders by therapeutic areas.

Key books are available as well, some of them representing substantial information resources on health outcomes scales.

The library also stores the Patient-Reported Outcomes Newsletter published by the MAPI Research Trust. All issues are available at the library and are distributed at no charge upon request.

Please click here to access the PRO Newsletter on line. www.pro-newsletter.com.





PE collection

prmThe more recent Pharmaco-Epidemiology collection comprises over 850 articles recorded in the Information Resources Centre library catalogue.

In particular, we have subscriptions to key journals in this field such as Epidemiology and Drug Safety and Le Bulletin de Pharmaco-Epidémiologie et de Santé Publique.

All articles are physically available in our library.

The library also stores the brand new PharmacoEpi and Risk Management Newsletter published by the MAPI Research Trust. Issue 0 launched in Spring 2008 is available at the library and distributed at no charge upon request.

Please click here to access the PRM Newsletter on line. www.prmnewsletter.org

 

To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)