MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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RefPRO© Database

This collection is composed of more than 23,700+ articles on health outcomes assessment focusing on HRQL and patient-reported outcomes (PRO) which have been indexed in a specific retrieval system, Reference Manager. All documents can be consulted at the Information Resources Centre.

Searching information in RefPRO© Database

Further to the usual search fields of computerized databases (such as Author, Keyword, Publication date, Periodical, etc.), fields specific to PRO and to MAPI Research Trust’s activities are included such as the name of the questionnaires used or mentioned in the publication, the availability of the questionnaire in the article or not, the countries of study, thus adding unique, quick and valuable resources of information.

 

To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)