MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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External Databases

The access to all classic biomedical (e.g., Medline, Excerpta Medica, Biosis, Current Contents, Psychabstracts) and specific HRQoL databases (e.g., Compendium of Quality of Life Instruments by Sam Salek), as well as a systematic review of PRO sites on the Internet (e.g., The American Thoracic Society website), complements our resources.

We also have access to epidemiologic databases such as the "Incidence and Prevalence Database", the french database "Base de Données en Santé Publique (BDSP)"(Public Health Database) and to information on several health care databases on the internet e.g. the Digest of International Health Care Database available on the ISPOR website.

We regularly consult on-line registries of clinical trials e.g. www.clinicaltrials.gov, the metaRegister of Controlled Trials (www.controlled-trials.com).

 

To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)