MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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databases

MAPI Research Trust has access to a variety of information databases and also develops and maintains specific tools serving all the scientific community when needed.

RefPRO and RefPE are internal bibliographic databases created to facilitate our access to scientific literature in the fields of Patient-Reported Outcomes and Pharmaco-Epidemiology.


PROQOLID, our Patient-Reported Outcome and Quality of Life Instruments Database was launched in 2002.
More details on ProQolid is provided here.


PROLabels, our database gathering drugs approved with PRO labeling claims granted by the FDA and the EMA was developed with the collaboration of MAPI Values and launched in 2006.
More details on PROLabels is provided here.
 

To access our catalog, please click here.

New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)