Links

The non-exhaustive list below will help you find other sites of potential interest.

Learned Societies:

Australian Health Outcomes Collaboration
www.health.act.gov.au/ahoc

CDC HRQOL Website (centers for Disease Control and Prevention)
www.cdc.gov/hrqol/index.htm

Cochrane Colaboration
www.cochrane.org

ENCePP (European Network Centres for Pharmacoepidemiology and Pharmacovigilance)
www.encepp.eu

We [Mapi Research Trust] are a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.

ISOQOL (International Society for Quality of Life Research)
www.isoqol.org

ISPE (International Society for Pharmaceutical Engineering)
www.ispe.org

ISPOR (International Society for Pharmacoeconomics and Outcomes Research)
www.ispor.org

ISPQOLS (International Society for Quality-of-Life Studies)
www.isqols.org

National Institutes of Health (NIH)
www.nih.gov


Questionnaires:

C-SSRS (Center for Suicide Risk Assessment)
www.cssrs.columbia.edu

EORTC Quality of Life Unit
groups.eortc.be/qol/

EuroQol
www.euroqol.org

FACIT (Functional Assessment of Chronic Illness Therapy)
www.facit.org

HealthACTCHQ (HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families. )
www.healthactchq.com

IQOLA (International Quality of Life Assessment)
www.iqola.org

Measurement of Health-Related Quality of Life & Asthma Control
www.qoltech.co.uk

PedsQL™ (Measurement Model for the Pediatric Quality Inventory™)
www.pedsql.org

RAND
www.rand.org

Rehabilitation Measures Database
www.rehabmeasures.org

SF-36
www.sf-36.org


Health Authorities:

EMA (European Medicines Agency)
www.ema.europa.eu

FDA (U.S. Food and Drug Administration)
www.fda.gov


Mapi Websites:

ERIQA (European Regulatory Issues on Quality of Life Assessment Group)
www.eriqa-project.com

Mapi Group
www.mapigroup.com

Mapi Store
store.mapigroup.com

PMR database (Post-Marketing Requirements database)
www.mapi-pmr.org

PRM Newsletter (PharmacoEpi and Risk Management Newsletter)
www.prmnewsletter.org

PRO Harmonization Group
www.eriqa-project.com/pro-harmo/home.html

PROLabels database (Patient-Reported Outcomes & drug market authorizations)
www.mapi-prolabels.org

PRO Newsletter (Patient-Reported Outcomes Newsletter)
www.pro-newsletter.com

PROQOLID database (Patient-Reported Outcome and Quality of Life Instruments Database)
www.proqolid.org


Other:

World Health Organization (WHO)
www.who.int