Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the field of Patient-Centered Outcomes worldwide.

LINKS


lyon02The non-exhaustive list below will help you find other sites of potential interest.

 

Learned Societies:
 
# Australian Health Outcomes Collaboration
www.health.act.gov.au/ahoc

# CDC HRQOL Website
Centers for Disease Control and Prevention
www.cdc.gov/hrqol/index.htm

# Cochrane Collaboration
www.cochrane.org
 
 
carre5 ENCePP
 
European Network of Centres for Pharmacoepidemiology and Pharmacovigilance
We [Mapi Research Trust] are a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.
 
carre5 ISOQOL
International Society for Quality of Life Research
www.isoqol.org
 
carre5 ISPE
International Society for Pharmaceutical Engineering

# ISPOR
International Society for Pharmacoeconomics and Outcomes Research
www.ispor.org
 
 # ISQOLS
International Society for Quality-of-Life Studies
 
 
carre5 National Institutes of Health (NIH)
www.nih.gov
 
 
Questionnaires:
 
# C-SSRS
Center for Suicide Risk Assessment 
www.cssrs.columbia.edu
 
# EORTC Quality of Life Unit
 http://groups.eortc.be/qol/
 
 
# FACIT
 Functional Assessment of Chronic Illness Therapy
www.facit.org
 
# HealthActCHQ
HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families.
www.healthactchq.com
 

# IQOLA 
International Quality of Life Assessment
www.iqola.org
 
carre5 Measurement of Health-Related Quality of Life & Asthma Control
www.qoltech.co.uk
 
carre5 PedsQLTM
Measurement Model for the Pediatric Quality InventoryTM
 
carre5 RAND
 
carre5 Rehabilitation Measures Database
www.rehabmeasures.org
 
 
 
Health Authorities:
 
carre5 EMA 
European Medicines Agency
 
carre5 FDA
U.S. Food and Drug Administration
 
 
Mapi websites:
 
# ERIQA
European Regulatory Issues on Quality of Life Assessment Group
www.eriqa-project.com
 
# Mapi Group
www.mapigroup.com
 
carre5 Mapi Store
 
carre5 PMR database
Post-Marketing Requirements database

www.mapi-pmr.org

carre5 PRM Newsletter
PharmacoEpi and Risk Management Newsletter

carre5 PRO Harmonization Group
 
carre5 PROLabels database 
Patient-Reported Outcomes & drug marketing authorizations
 
carre5 PRO Newsletter
Patient-Reported Outcomes Newsletter

# PROQOLID database
Patient-Reported Outcome and Quality of Life Instruments Database 
www.proqolid.org
 
 
 
 
Other:

# World Health Organization (WHO)
www.who.int

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To access the catalog of the questionnaires distributed by Mapi Research Trust, please click here

 

 

Mapi Research Trust's catalog is now available on PROQOLID !

  

 

 

Some of the questionnaires distributed by Mapi Research Trust are now available for download through our PROQOLID database for Non-Funded Academic Users!
 

Please visit PROQOLID!