MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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The list below will help you find other sites of potential interest.


# Australian Health Outcomes Collaboration
www.health.act.gov.au/ahoc

# CDC HRQOL Website
CDC Mission: to promote health and quality of life by preventing and controlling disease, injury, and disability
www.cdc.gov/hrqol/index.htm

# Cochrane Collaboration
www.cochrane.org

# Cochrane Patient-Reported Outcomes Methods Group
www.cochrane-pro-mg.org

# C-SSRS
Center for Suicide Risk Assessment
www.cssrs.columbia.edu

# EORTC Quality of Life Unit
http://groups.eortc.be/qol

# ERIQA
European Regulatory Issues on Quality of Life Assessment Group
www.eriqa-project.com

# EuroQol
www.euroqol.org

# Evaluacion Clinica y Economica de Medicamentos (ECEM)
Spanish site of Clinical and Economic Evaluation of Drugs
www.farmacoeconomia.com

# FACT - FACIT
www.facit.org

# Future Drugs
Publishers of the Expert Reviews series -delivering critical analysis in a new healthcare era
www.future-drugs.com

# HealthActCHQ
HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families.
www.healthactchq.com

# Health Assessment Lab
www.hal-health.org

# Health Psychology Research Ltd
www.healthpsychologyresearch.com

# Hong Kong Society for Quality of Life
The Hong Kong Society for Quality of Life (HKSoQOL) is a non-profit making organization consisting of members who are interested in the study on quality of life. It promotes the application of informed knowledge of QOL to enhance services and policy development in public health, medical, rehabilitation and the social service sectors.
http://www.hksoqol.org

# Institute for Health & Productivity Management (IHPM)
The premier global resource on the impact of employee health on productivity
www.ihpm.org

# International Health Economics Associations (iHEA)
www.ihea2001york.org.uk

# IQOD
www.iqod.org

# IQOLA
www.iqola.org

# ISOQOL
www.isoqol.org

# ISPOR
www.ispor.org

# ISQOLS
www.cob.vt.edu/market/isqols

# King's Fund
www.kingsfund.org.uk

# MAPI Group
www.mapigroup.com

# MAPI Values
www.mapivalues.com

# Measurement of Health Related Quality of Life - Prof. Elizabeth Juniper
www.qoltech.co.uk

# Medical Outcomes Trust
www.outcomes-trust.org

# National Centre for Health Outcomes Development (NCHOD).
Web site relating to patient-assessed health instruments. Includes over 6000 evaluations.
phi.uhce.ox.ac.uk/

# PRO Harmonization Group
www.PRO-harmonization-group.com

# PROQOLID, Patient-Reported Outcomes and Quality of Life Instruments Database
Information about PRO questionnaires
www.PROQOLID.org

# PedsQL™, Mesurement Model for the Pediatric Quality of Life Inventory™
The PedsQL™ Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. The PedsQL™ Measurement Model integrates seamlessly both generic core scales and disease-specific modules into one measurement system.
www.pedsql.org

# Qualité de Vie
French-speaking site
Information about global quality of life (health/work/social relationships)

www.qualitedevie.org

# Quality of Life and Management of Living Resources
(The European Commission Community Research)

www.cordis.lu/life/home.html

# Quality of Life Research Journal
Official Journal of the International Society for Quality of Life Research
www.kluweronline.com/issn/0962-9343/contents

# Quality of Life Resources of the American Thoracic Society
www.atsqol.org

# QualityMetric
www.qmetric.com

# SF-36
www.sf-36.com

# Stroke Impact Scale
www2.kumc.edu/coa/SIS_Database/stroke-impact_pg2.htm

# The Quality-of-Life Research Centre
home2.inet.tele.dk/fclk/

# TIME
Toolkit of Instruments to Measure End-of-Life Care
www.chcr.brown.edu/pcoc/toolkit.htm

# University of Toronto - Health-Related Quality of Life
www.utoronto.ca/qol

# Universités d'Eté de Pharmaco-Epidemiologie
www.upe-avignon.org

# WHO
www.who.ch

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New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)