Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide. |
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Learned Societies:
 Australian Health Outcomes Collaborationwww.health.act.gov.au/ahoc
CDC HRQOL Website Centers for Disease Control and Prevention www.cdc.gov/hrqol/index.htm Cochrane Collaboration www.cochrane.org ENCePPEuropean Network of Centres for Pharmacoepidemiology and Pharmacovigilance
We [Mapi Research Trust] are a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.
ISOQOL
ISPEInternational Society for Pharmaceutical Engineering
International Society for Quality-of-Life Studies
Questionnaires:
FACIT HealthActCHQHealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families. www.healthactchq.com IQOLA PedsQLTMMeasurement Model for the Pediatric Quality InventoryTM
RAND Rehabilitation Measures DatabaseHealth Authorities:
EMAEuropean Medicines Agency
FDAU.S. Food and Drug Administration
Mapi websites:
ERIQA Mapi Store PMR databasePost-Marketing Requirements database
PRM NewsletterPharmacoEpi and Risk Management Newsletter
PRO Harmonization GroupPatient-Reported Outcomes & drug marketing authorizations
PRO NewsletterPatient-Reported Outcomes Newsletter
PROQOLID REGISTRAT-MapiA Global Late Phase CRO
Other:
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To access the catalog of the questionnaires distributed by Mapi Research Trust, please click here.
New questionnaires distributed by Mapi Research Trust
ACTS (Anti-Clot Treatment Scale)
Stefan Cano and Donna Lamping (UK), with a research grant provided by Bayer Pharma AG (Germany)
BASDAI (Bath Ankylosing Spondylitis Disease Activity Index)
Andrei Calin (UK)
BASFI (Bath Ankylosing Spondylitis Functional Index)
Andrei Calin (UK)
IBHQ (Impact of Bronchiolitis Hospitalization Questionnaire)
Abbott France (France)
PACD (Pediatric Asthma Caregiver Diary)
Merck Sharp & Dohme Corp. (USA)
SAC BDI-TDI (Self-administered Computerized version of the BDI-TDI)
Psychological Applications LLC (USA) and Donald A. Mahler (USA)
VAPI (Vaccinees' Perception of Injection)
Sanofi Pasteur (France) / Mapi (France)
Coming soon!
Information about licensing the following instruments will soon be displayed on our site.
Meanwhile for any information please contact us !
Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)
G-SAQ (Grenoble Sleep Apnea Questionnaire)
Daniel Veale et al. (France)
P-RLS-DI (Pediatric Restless Legs Syndrome Diagnostic Interview)
Boehringer Ingelheim Pharma (Germany)
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