Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the field of Patient-Centered Outcomes worldwide.


lyon02The non-exhaustive list below will help you find other sites of potential interest.


Learned Societies:
# Australian Health Outcomes Collaboration

# CDC HRQOL Website
Centers for Disease Control and Prevention

# Cochrane Collaboration
carre5 ENCePP
European Network of Centres for Pharmacoepidemiology and Pharmacovigilance
We [Mapi Research Trust] are a partner centre of the ENCePP scientific network which is coordinated by the European Medicines Agency. We are dedicated to excellence in research by adhering to the ENCePP Guide on Methodological Standards and promoting scientific independence and transparency. We register studies in the ENCePP E-Register of Studies, a publicly accessible resource for the registration of pharmacoepidemiological and pharmacovigilance studies.
carre5 ISOQOL
International Society for Quality of Life Research
carre5 ISPE
International Society for Pharmaceutical Engineering

International Society for Pharmacoeconomics and Outcomes Research
International Society for Quality-of-Life Studies
carre5 National Institutes of Health (NIH)
Center for Suicide Risk Assessment
# EORTC Quality of Life Unit
 Functional Assessment of Chronic Illness Therapy
# HealthActCHQ
HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families.

International Quality of Life Assessment
carre5 Measurement of Health-Related Quality of Life & Asthma Control
carre5 PedsQLTM
Measurement Model for the Pediatric Quality InventoryTM
carre5 RAND
carre5 Rehabilitation Measures Database
Health Authorities:
carre5 EMA 
European Medicines Agency
carre5 FDA
U.S. Food and Drug Administration
Mapi websites:
European Regulatory Issues on Quality of Life Assessment Group
# Mapi Group
carre5 Mapi Store
carre5 PMR database
Post-Marketing Requirements database

carre5 PRM Newsletter
PharmacoEpi and Risk Management Newsletter

carre5 PRO Harmonization Group
carre5 PROLabels database 
Patient-Reported Outcomes & drug marketing authorizations
carre5 PRO Newsletter
Patient-Reported Outcomes Newsletter

# PROQOLID database
Patient-Reported Outcome and Quality of Life Instruments Database

# World Health Organization (WHO)



2016 08 28