MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Pharmaco-Epidemiology worldwide.
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The list below will help you find other sites of potential interest.


Australian Health Outcomes Collaboration
www.health.act.gov.au/ahoc

CDC HRQOL Website
CDC Mission: to promote health and quality of life by preventing and controlling disease, injury, and disability
www.cdc.gov/hrqol/index.htm

Cochrane Collaboration
www.cochrane.org

Cochrane Patient-Reported Outcomes Methods Group
www.cochrane-pro-mg.org

EORTC Quality of Life Unit
http://groups.eortc.be/qol

ERIQA
European Regulatory Issues on Quality of Life Assessment Group
www.eriqa-project.com

EuroQol
www.euroqol.org

Evaluacion Clinica y Economica de Medicamentos (ECEM)
Spanish site of Clinical and Economic Evaluation of Drugs
www.farmacoeconomia.com

FACT - FACIT
www.facit.org

Future Drugs
Publishers of the Expert Reviews series -delivering critical analysis in a new healthcare era
www.future-drugs.com

HealthActCHQ
HealthActCHQ licenses the Child Health Questionnaire and a series of condition-specific surveys to measure quality of life for patients and their families.
www.healthactchq.com

Health Assessment Lab
www.hal-health.org

Health Psychology Research Ltd
www.healthpsychologyresearch.com

Hong Kong Society for Quality of Life
The Hong Kong Society for Quality of Life (HKSoQOL) is a non-profit making organization consisting of members who are interested in the study on quality of life. It promotes the application of informed knowledge of QOL to enhance services and policy development in public health, medical, rehabilitation and the social service sectors.
http://www.hksoqol.org

Institute for Health & Productivity Management (IHPM)
The premier global resource on the impact of employee health on productivity
www.ihpm.org

International Health Economics Associations (iHEA)
www.ihea2001york.org.uk

IQOD
www.iqod.org

IQOLA
www.iqola.org

ISOQOL
www.isoqol.org

ISPOR
www.ispor.org

ISQOLS
www.cob.vt.edu/market/isqols

King's Fund
www.kingsfund.org.uk

Mapi Values
www.mapivalues.com

Measurement of Health Related Quality of Life - Prof. Elizabeth Juniper
www.qoltech.co.uk

Medical Outcomes Trust
www.outcomes-trust.org

National Centre for Health Outcomes Development (NCHOD).
Web site relating to patient-assessed health instruments. Includes over 6000 evaluations.
phi.uhce.ox.ac.uk/

PRO Harmonization Group
www.PRO-harmonization-group.com

PROQOLID, Patient-Reported Outcomes and Quality of Life Instruments Database
Information about PRO questionnaires
www.PROQOLID.org

PedsQL™, Mesurement Model for the Pediatric Quality of Life Inventory™
The PedsQL™ Measurement Model is a modular approach to measuring health-related quality of life (HRQOL) in healthy children and adolescents and those with acute and chronic health conditions. The PedsQL™ Measurement Model integrates seamlessly both generic core scales and disease-specific modules into one measurement system.
www.pedsql.org

Qualité de Vie
French-speaking site
Information about global quality of life (health/work/social relationships)

www.qualitedevie.org

Quality of Life and Management of Living Resources
(The European Commission Community Research)

www.cordis.lu/life/home.html

Quality of Life Research Journal
Official Journal of the International Society for Quality of Life Research
www.kluweronline.com/issn/0962-9343/contents

Quality of Life Resources of the American Thoracic Society
www.atsqol.org

QualityMetric
www.qmetric.com

SF-36
www.sf-36.com

Stroke Impact Scale
www2.kumc.edu/coa/SIS_Database/stroke-impact_pg2.htm

The Quality-of-Life Research Centre
home2.inet.tele.dk/fclk/

TIME
Toolkit of Instruments to Measure End-of-Life Care
www.chcr.brown.edu/pcoc/toolkit.htm

University of Toronto - Health-Related Quality of Life
www.utoronto.ca/qol

Universités d'Eté de Pharmaco-Epidemiologie
www.upe-avignon.org

WHO
www.who.ch

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New questionnaires distributed by MAPI Research Trust

ADCPQ (Alzheimer’s Disease Caregiver Preference Questionnaire)  
Novartis Pharmaceuticals Corporation (USA)

FIS (Fatigue Impact Scale)
D-FIS (Daily Fatigue Impact Scale)
John Fisk (Canada)  

HIV-SQUAD (Symptom Quality of Life Adherence) Questionnaire ®
Abbott France (France) 

MOS-HIV (Medical Outcome Study-HIV Health Survey)
Albert Wu (USA)

MPQ (McGill Pain Questionnaire)
Ronald Melzack (Canada)

MPQ-SF (McGill Pain Questionnaire - Short Form)
Ronald Melzack (Canada)

Nausea Questionnaire 
Ronald Melzack (Canada)

ODI (Oswestry Disability Questionnaire)
Jeremy Fairbank (UK)

PHQ (Patient Health Questionnaire Screeners
Pfizer Inc. (USA)

PRAC-Test (PRAgmatic Content and face validity Test)
Mapi Values (France)

SF-MPQ-2 (Short-form McGill Pain Questionnaire)
Ronald Melzack (Canada) and IMMPACT (USA) 


To access our catalog, please click here.



Coming soon!

Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)


For any information, please contact:
contact@mapi-trust.org