MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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PRO Newsletter

Patient Reported Outcomes (PRO) Newsletter

pro-newsletter.comSince its creation in 1991 as the QoL Newsletter, the mission of the PRO Newsletter has been to encourage and facilitate the rapid dissemination and exchange of information on HRQOL and Patient-Reported Outcomes within the scientific community, such as announcements of meetings, congresses and books or journals dedicated to these topics. It is a bi-annual publication distributed free of charge to 5,500 people in 75 countries.

Although the PRO Newsletter was not originally intended to present in-depth articles on methodology or study results, we have received increasing numbers of communications and research papers from various sources (QOL experts, clinicians and representatives from the pharmaceutical industry), wishing to share their experience in the field. Some of these papers have by now been referenced in academic publications.

Go to www.pro-newsletter.com
 

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New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)