MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Pharmaco-Epidemiology worldwide.
Home MAJOR PROJECTS PRO Newsletter
PRO Newsletter PDF Print E-mail

Patient Reported Outcomes (PRO) Newsletter

pro-newsletter.comSince its creation in 1991 as the QoL Newsletter, the mission of the PRO Newsletter has been to encourage and facilitate the rapid dissemination and exchange of information on HRQOL and Patient-Reported Outcomes within the scientific community, such as announcements of meetings, congresses and books or journals dedicated to these topics. It is a bi-annual publication distributed free of charge to 8,000 people in 75 countries.

Although the PRO Newsletter was not originally intended to present in-depth articles on methodology or study results, we have received increasing numbers of communications and research papers from various sources (QOL experts, clinicians and representatives from the pharmaceutical industry), wishing to share their experience in the field. Some of these papers have by now been referenced in academic publications.

Go to www.pro-newsletter.com
 

New questionnaires distributed by MAPI Research Trust


FIS (Fatigue Impact Scale)
D-FIS (Daily Fatigue Impact Scale)
John Fisk (Canada)

KHQ (King's Health Questionnaire)
Linda Cardozo and Con Kelleher (UK)

MPQ (McGill Pain Questionnaire)
Ronald Melzack (Canada)

MPQ-SF (McGill Pain Questionnaire - Short Form)
Ronald Melzack (Canada)

Nausea Questionnaire 
Ronald Melzack (Canada)

ODI (Oswestry Disability Questionnaire)
Jeremy Fairbank (UK)

PI-ED (Paediatric Index of Emotional Distress)
GL Assessment (UK)

SATMED-Q (Treatment Satisfaction with Medicines Questionnaire)
The EACCOS Group (Spain)

SF-MPQ-2 (Short-form McGill Pain Questionnaire)
Ronald Melzack (Canada) and IMMPACT (USA)


To access our catalog, please click here.



Coming soon!


Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)



For any information, please contact:
contact@mapi-trust.org