Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.

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Cochrane Collaboration
Cochrane Collaboration

The Cochrane Patient Reported Outcomes (PRO) Methods Group

The Cochrane Collaboration, launched in 1993, is an international organization that aims to help people to make well-informed decisions about health care by preparing, maintaining, and promoting the accessibility of systematic reviews of the effects of health care interventions.
Considering that the evaluation of Health-Related Quality of Life (HRQoL) and that the problems it poses might serve the objectives of the Cochrane Collaboration, in 1997 the Mapi proposed the creation of an HRQoL Methods Group (MG) within the Cochrane Collaboration. In the beginning of 2005, the Methods Group Representatives of the Monitoring and Registration Group of the Cochrane Collaboration approved the change of name from "Health Related Quality of Life Methods Group" to the "Patient Reported Outcomes (PRO) Methods Group.
The PRO MG is currently convened jointly by Prof. Donald Patrick (University of Washington, Seattle, USA) and Prof. Gordon Guyatt (McMaster University Health Sciences, Canada). The Group has 80 members from all over the world.

The objective of the Group is to advise Cochrane reviewers about when and how to incorporate PRO data into systematic reviews of health care interventions.

In order to achieve this objective, the Group is divided into three main subgroups:

carre6 Concepts and Methods Review
carre6 Review Design
carre6 Analysis

For more information about the Cochrane PRO Methods Group and if you wish to join: www.cochrane-pro-mg.org

 

2013 05 20

To access the catalog of the questionnaires distributed by Mapi Research Trust, please click here.

 

New questionnaires distributed by Mapi Research Trust 
 
BASDAI (Bath Ankylosing Spondylitis Disease Activity Index)
Andrei Calin (UK)

BASFI (Bath Ankylosing Spondylitis Functional Index)
Andrei Calin (UK)

CQLQ (Cough-Specific Quality-of-Life Questionnaire)
Richard S. Irwin, Kenneth E. Fletcher and Cynthia T. French (USA)

IBHQ (Impact of Bronchiolitis Hospitalization Questionnaire)
Abbott France (France)

PACD (Pediatric Asthma Caregiver Diary)
Merck Sharp & Dohme Corp. (USA)

SAC BDI-TDI (Self-administered Computerized version of the BDI-TDI) 
Psychological Applications LLC (USA) and Donald A. Mahler (USA)




Coming soon!

Information about licensing the following instruments will soon be displayed on our site.
Meanwhile for any information please contact us !

Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)

G-SAQ (Grenoble Sleep Apnea Questionnaire)
Daniel Veale et al. (France)

P-RLS-DI (Pediatric Restless Legs Syndrome Diagnostic Interview)
Boehringer Ingelheim Pharma (Germany)