MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Pharmaco-Epidemiology worldwide.
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Cochrane Collaboration

The Cochrane Patient Reported Outcomes (PRO) Methods Group

The Cochrane Collaboration, launched in 1993, is an international organization that aims to help people to make well-informed decisions about health care by preparing, maintaining, and promoting the accessibility of systematic reviews of the effects of health care interventions.
Considering that the evaluation of Health-Related Quality of Life (HRQoL) and that the problems it poses might serve the objectives of the Cochrane Collaboration, in 1997 the MAPI Institute proposed the creation of an HRQoL Methods Group (MG) within the Cochrane Collaboration. In the beginning of 2005, the Methods Group Representatives of the Monitoring and Registration Group of the Cochrane Collaboration approved the change of name from "Health Related Quality of Life Methods Group" to the "Patient Reported Outcomes (PRO) Methods Group.
The PRO MG is currently convened jointly by Prof. Donald Patrick (University of Washington, Seattle, USA) and Prof. Gordon Guyatt (McMaster University Health Sciences, Canada). The Group has 38 active members in 12 countries around the world.

The objective of the Group is to advise Cochrane reviewers about when and how to incorporate PRO data into systematic reviews of health care interventions.

In order to achieve this objective, the Group is divided into three main subgroups:

carre6 Concepts and Methods Review,
carre6 Review Design,
carre6 Analysis.

For more information about the Cochrane PRO Methods Group and if you wish to join: www.cochrane-pro-mg.org

 

New questionnaires distributed by MAPI Research Trust

ADCPQ (Alzheimer’s Disease Caregiver Preference Questionnaire)  
Novartis Pharmaceuticals Corporation (USA)

FIS (Fatigue Impact Scale)
D-FIS (Daily Fatigue Impact Scale)
John Fisk (Canada)  

HIV-SQUAD (Symptom Quality of Life Adherence) Questionnaire ®
Abbott France (France) 

MOS-HIV (Medical Outcome Study-HIV Health Survey)
Albert Wu (USA)

MPQ (McGill Pain Questionnaire)
Ronald Melzack (Canada)

MPQ-SF (McGill Pain Questionnaire - Short Form)
Ronald Melzack (Canada)

Nausea Questionnaire 
Ronald Melzack (Canada)

ODI (Oswestry Disability Questionnaire)
Jeremy Fairbank (UK)

PHQ (Patient Health Questionnaire Screeners
Pfizer Inc. (USA)

PRAC-Test (PRAgmatic Content and face validity Test)
Mapi Values (France)

SF-MPQ-2 (Short-form McGill Pain Questionnaire)
Ronald Melzack (Canada) and IMMPACT (USA) 


To access our catalog, please click here.



Coming soon!

Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)


For any information, please contact:
contact@mapi-trust.org