Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.

HISTORY
history

In January 1995, Mapi CRO and Adelphi Group came together to found a non-profit service organization, unique in the field of Health-Related Quality of Life (HRQoL) research, Mapi Research Institute.

The main objective of the Institute was to support and promote collaborative research initiatives in the field of health-related quality of life, involving academics, pharmaceutical companies, health authorities and international organizations such as the World Health Organization or the European Community.

For 9 years, the Institute followed its motto "Building the science of quality of life". Many projects were launched (ERIQA, IQOD, PROQOLID, the Cochrane PRO MG, etc) and hundreds of HRQoL measures were linguistically validated. In 1995 the business started with 5 people who quickly grew to 70 people by January 2004. Today a team of 95 people are dedicated to linguistic validation of PRO instruments for appropriate cross-cultural use and interpretation, leading the projects in close collaboration with a network of 310 experts in 92 countries. In response to our increasing activities and to reinforce our mission, as of 1 June 2004, Mapi Research Institute was divided into 2 separate entities:

Mapi becomes a traditional company conducting linguistic validations of Patient Reported Outcomes instruments worldwide.

Mapi Research Trust provides reliable, comprehensive and up-to-date information services to those in the field of Patient-Reported Outcomes (PRO) and Epidemiology around the globe.
 
 

The Mapi Research Trust's activities receive continued sponsorship from Mapi as well as from Mapi Group and other organizations.

In this way, we hope to facilitate the development of Mapi Research Trust and the sponsorship of its activities by other organizations.

 

2013 05 25

To access the catalog of the questionnaires distributed by Mapi Research Trust, please click here.

 

New questionnaires distributed by Mapi Research Trust 
 
BASDAI (Bath Ankylosing Spondylitis Disease Activity Index)
Andrei Calin (UK)

BASFI (Bath Ankylosing Spondylitis Functional Index)
Andrei Calin (UK)

CQLQ (Cough-Specific Quality-of-Life Questionnaire)
Richard S. Irwin, Kenneth E. Fletcher and Cynthia T. French (USA)

IBHQ (Impact of Bronchiolitis Hospitalization Questionnaire)
Abbott France (France)

PACD (Pediatric Asthma Caregiver Diary)
Merck Sharp & Dohme Corp. (USA)

SAC BDI-TDI (Self-administered Computerized version of the BDI-TDI) 
Psychological Applications LLC (USA) and Donald A. Mahler (USA)




Coming soon!

Information about licensing the following instruments will soon be displayed on our site.
Meanwhile for any information please contact us !

Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)

G-SAQ (Grenoble Sleep Apnea Questionnaire)
Daniel Veale et al. (France)

P-RLS-DI (Pediatric Restless Legs Syndrome Diagnostic Interview)
Boehringer Ingelheim Pharma (Germany)