MAPI Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.
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Scientific Advisory Committee

Donald L. Patrick, Ph.D., MSPH
Department of Health Services
Seattle Quality of Life Group\
Center for Disability Policy
and Research
University of Washington
Box 359455 Seattle,
WA 98195-9455
USA
For Visitors: 4333 Brooklyn Ave NE,
Rm 14-101
Phone: +1 206 685 7252
Fax : +1 206 616 3135
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John E. Ware, Jr., Ph.D
Professor and Chief of the Outcomes Measurement Science Division Department of Quantitative Health Sciences
University of Massachusetts Medical School (UMMS)
55 Lake Avenue North
Worcester 
MA 01655
USA
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CRB Joyce, Ph.D.
Beim Lindenbaum 15
4123 Allschwill
Switzerland
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Albert W. Wu, M.D., M.P.H.
Johns Hopkins University
624 North Broadway
Baltimore, MD 2120
USA
Tel: +1 410 955 6567
Fax: +1 410 955 0470
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New questionnaires distributed by MAPI Research Trust

ACCEPT (Chronic Treatment Acceptance Questionnaire)
MAPI SAS / Registrat MAPI (France)

ADRQL (Alzheimer Disease Related Quality of Life)
Black Betty S, Kasper Judith D and Rabins Peter V. - Johns Hopkins Medical INstitutions (USA)

Barthel Index questionnaire
The Maryland State Medical Society - MedChi (USA)

ESS (Epworth Sleepiness Scale) 
Murray W. Johns (Australia)

FIRST (Fibromyalgia Rapid Screening Tool)
Serge Perrot & Didier Bouhassira (France)

PDSS-2 (Parkinson's Disease Sleep Scale)
Ray Chaudhuri (UK) & Claudia Trenkwalder (Germany)

Skindex questionnaire 
Mary-Margaret Chren (USA)

TRIM-D and TRIM-D Device (Treatment Related Impact Measure for Diabetes)
Novo Nordisk (Denmark)