Intellectual Property, Copyright issues and distribution of PRO questionnaires

Articles

Anfray C. Patient-reported outcomes instruments: bridging the gap between international copyright laws and common practice for developers and users-a case example. Quality of  Life Newsletter. 2009;18(10):1281–1283.

Posters

 Anfray C, Emery MP, Zarit SH. Obtaining Reliable Information about Translations of PRO Measures: the Advantages of a Central Distribution System. Presented at the 16th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), New Orleans, USA, October 2009.

 Anfray C, Emery MP,and Zarit SH. The Advantages of a Centralized Dissemination Strategy for Health Outcomes Instruments and Their Translations: A Case Study using the Zarit Burden Interview (ZBI). Presented at the 12th Annual European Congress of the ISPOR, Paris, France, October 2009.

 Anfray C, Emery MP. Autorship and copyright issues of PRO instruments in South America. Presented at the 15th Annual Conference of the International Society for Quality Of Life Research (ISOQOL), Monteviedo, Uruguay, October 2008.

Anfray C, Emery MP. Use of Health Outcomes Questionnaires: Authorship and Copyright Issues. Examples in the Respiratory Field. Presented at the Annual Congress 2007 European Respiratory Society (ERS), Stockholm, Sweden September 2007.

Anfray C, Emery MP. Use of Patient-Reported Outcomes (PRO) Instruments: Copyright Issues. Value in Health May/June 2007;10(3):A189. Presented at the 12th Annual International Meeting of the International Society for Pharmacoeconomics and Outcomes Research (ISPOR) , Arlington, May 2007.

Anfray C, Emery MP. Use of PRO instruments: licensing and copyright issues. Quality of Life Research. 2006;14:A-112. Presented at the 13th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Lisbon, October 2006.

Oral presentations

  Anfray C, Emery MP. Access to Health-related Quality of Life (HRQL) Instruments and their Translations in the Light of EMEA Recommendations. Presented at the 11th Annual European Meeting of the ISPOR, Athens, Greece, November 2008.

Anfray C, Emery MP. Patient-Reported Outcome (PRO) instruments: bridging the gap between international copyright laws and common practice for developers and users. Presented at the International Conference on Survey Methods in Multinational, Multiregional and Multicultural Contexts (3MC), Berlin, Germany, June 2008.

Anfray C, Emery MP. Access and Use of Patient-Reported Outcomes (PRO) instruments in international studies: authorship and copyright issues. Presented at the 14th Annual Conference of the International Society for Quality of Life Research (ISOQOL), Toronto, Canada, October 10 2007.