Mapi Research Trust provides reliable, comprehensive and up-to-date information services to research scientists, pharmaceutical companies, and governmental health agencies involved in the fields of Patient-Reported Outcomes (PRO) and Epidemiology worldwide.

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Experience
experience


Since the early 90's we have been collecting and processing information in the field of Patient-Reported Outcomes accomplishing the following as a service to the PRO community:


carre6 an ever growing network of experts comprising 3,500 researchers and representatives of the health authorities worldwide
carre6 the biannual publication of the Patient Reported Outcomes (PRO) Newsletter worldwide to a readership of over 5,500
carre6 the official distribution of over 110 PRO questionnaires and their translations
carre6 over 150 literature reviews covering the main therapeutic areas
carre6 the development of unique and specific databases in the field: PROQOLID and PROLabels counting all major pharmaceutical companies as subscribers as well as the FDA
carre6 processing of over 5,000 information requests per year (questionnaires, translations, methodologies, copyrights, conditions of use etc.)
carre6 publication of articles in peer-reviewed journals
carre6 oral, poster and workshop presentations at conferences

We are currently extending our information processing expertise to the field of Epidemiology with the following achievements:

carre6 publication of the Pharmaco-Epi and Risk Management (PRM) Newsletter
carre6 development of specific databases in the field
carre6 literature reviews
carre6 processing of information requests

 

2013 05 25

To access the catalog of the questionnaires distributed by Mapi Research Trust, please click here.

 

New questionnaires distributed by Mapi Research Trust 
 
BASDAI (Bath Ankylosing Spondylitis Disease Activity Index)
Andrei Calin (UK)

BASFI (Bath Ankylosing Spondylitis Functional Index)
Andrei Calin (UK)

CQLQ (Cough-Specific Quality-of-Life Questionnaire)
Richard S. Irwin, Kenneth E. Fletcher and Cynthia T. French (USA)

IBHQ (Impact of Bronchiolitis Hospitalization Questionnaire)
Abbott France (France)

PACD (Pediatric Asthma Caregiver Diary)
Merck Sharp & Dohme Corp. (USA)

SAC BDI-TDI (Self-administered Computerized version of the BDI-TDI) 
Psychological Applications LLC (USA) and Donald A. Mahler (USA)




Coming soon!

Information about licensing the following instruments will soon be displayed on our site.
Meanwhile for any information please contact us !

Crohn and Anti-tnf Treatment Satisfaction questionnaire
Abbott France (France)

G-SAQ (Grenoble Sleep Apnea Questionnaire)
Daniel Veale et al. (France)

P-RLS-DI (Pediatric Restless Legs Syndrome Diagnostic Interview)
Boehringer Ingelheim Pharma (Germany)